Long-Term Ill Health, Poverty and Ethnicity

Sarah Salway, Lucinda Platt, Punita Chowbey, Kaveri Harriss, and Elizabeth Bayliss

Long-Term Ill Health, Poverty and Ethnicity
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Sarah Salway, Lucinda Platt, Punita Chowbey, Kaveri Harriss, and Elizabeth Bayliss

Distributed for Policy Press at the University of Bristol

104 pages | 8 1/4 x 11 3/4 | © 2007
Paper $29.95 ISBN: 9781861349934 Published April 2007 For sale in North and South America only
Chronic ill-health is now recognised as a major public health and social welfare issue, with significant new policy initiatives in recent months.This report presents findings from a detailed new investigation into the experiences of individuals living with long-term ill-health and their families. New in-depth qualitative material is combined with secondary analyses of national datasets to examine the ways in which long-term ill-health impacts upon different dimensions of poverty. The report explores the links between long-term ill-health and three inter-related areas: employment, welfare benefits and social participation and social support. It covers an ethnically diverse sample in order to explore, though not assume, the relevance of ethnicity for the experience and consequences of long-term ill-health and identifies ways in which current UK health and social policy might better serve the needs of people with long-term health conditions.This accessible report is of importance to policy-makers and practitioners working across the public health and social welfare arenas. The findings are of relevance to a wide range of programme areas including: access to employment, welfare benefits, chronic illness self-management (Expert Patients Programmes) and ethnic minority disadvantage. Researchers and students will also find the report of interest.
Contents
List of tables, figures and boxes
Acknowledgements
Summary

1. Background and methodology
Summary points
Background to the study and research aims
Conceptualising poverty, long-term ill health and ethnicity
Methods
Overview of the report
2. Family, community and society: placing long-term health conditions in context
Summary points
Introduction
Family and household
Community
Society and state
Conclusions
3. Individual experiences of long-term ill health: barriers and supports to 'resilience'
Summary points
Introduction
Adjusting to the situation of finding meaning
Achieving feelings of self-wroth
Gaining control
Conclusions
4. Long-term health conditions and employment
Summary points
Introduction
Illness trajectories and attitudes to employment
Ill health, economic activity and employment
Ill health, ethnicity or other factors?
Barriers to employment
Exploring the possibility of differential effects of ill health
The financial rewards of work
Conclusions
5. Long-term health conditions and welfare benefits
Summary points
Introduction
Patterns of benefit take-up
deciding to claim sickness benefits
Experiences of the claiming process: battling with the system
Implications of receiving ill-health-related benefits
Conclusions
6. Long-term health conditions and social participation
Summary points
Introduction
Social participation: networks and activities
The impacts of long-term health conditions on social participation
The nature, use and effectiveness of social support
Conclusions
7. Relevance of findings for national policy
Introduction
Benefit entitlement and take-up
The appropriateness of work for those with long-term health conditions
The appropriateness of work for those caring for someone with a long-term health condition
Managing long-term ill health
Tackling minority ethnic disadvantage

References
Appendix A: Qualitative fieldwork
Appendix B: Rates of ill health and caring
Appendix C: Summary of DWP measures aimed at reducing the number of sickness benefit claimants
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