Critical Perspectives on User Involvement

Edited by Marian Barnes and Phil Cotterell

Critical Perspectives on User Involvement
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Edited by Marian Barnes and Phil Cotterell

Distributed for Policy Press at the University of Bristol

272 pages | 6 x 9 | © 2012
Paper $45.95 ISBN: 9781847427502 Published November 2011 For sale in North and South America only
Drawing on contributions from user activists and academic researchers, this topical reader provides a critical stock take of the state of user involvement. It considers different contexts in which such involvement is taking place and includes diverse and sometimes conflicting perspectives on the issues involved. This original and insightful critique will be an important resource for students studying health and social care and social work, researchers and user activists.
Sarah Carr, Social Care Institute for Excellence, London and Staffordshire University
"Compulsory reading for anyone who’s serious about research or transforming services to deliver authentic person-centred support. This book offers a unique opportunity to learn from the accumulated experience and expertise of leading service user researchers and activists along with practitioner collaborators and academic allies. "
Notes on contributors
Introduction: from margin to mainstream
      Marian Barnes and Phil Cotterell

Part One: Introduction: user movements
      Marian Barnes and Phil Cotterell
1. Survivors History Group takes a critical look at historians
      Survivors History Group
2. The Nottingham Advocacy Group: a short history
      Marian Barnes and Colin Gell
3. Building solidarity, ensuring diversity: lessons from service users’ and disabled people’s movements
      Peter Beresford and Fran Branfield
4. Service users and the third sector: opportunities, challenges and potentials in influencing the governance of public services
      Graham P. Martin
5. The capacity, impact and challenge of service users’ experiential knowledge
      Phil Cotterrell and Carolyn Morris
Part  One: Questions for reflection
Part Two: User involvement in services
      Marian Barnes and Phil Cotterell
6. Collaboration in public services: can service users and staff participate together?
      Michelle Farr
7. Changing patterns of service user involvement, 1990–2010
      Clara Evans and Ray Jones
8. Looking out from the middle: influencing policy change through user involvement
      Joe Duffy and Brendan McKeever
9. Changing minds: unleashing the potential of mental health service users—a critical perspective on current models of service user involvement and their impact on wellbeing and ‘recovery’
      Stephanie McKinley and Sarah Yiannoullou
10. Moving forward: understanding the negative experiences and impacts of patient and public involvement in health service planning, development and evaluation
      Sophie Staniszewska, Carole Mockford, Andy Gibson, Sandy Herron-Marx and Rebecca Putz
Part Two: Questions for reflection
Part Three: User involvement in research
      Marian Barnes and Phil Cotterell
11. Young mothers’ experiential knowledge and research process
      Geraldine Brady, Geraldine Brown and Corinne Wilson
12. Involving young people in research: making an impact in public health
      Louca-Mai Brady with young researchers Ellie Davis, Amrita Ghosh,
      Bhavika Surti and Laura Wilson
13. Projects through partnership: promoting participatory values through the research process
      Robert Kirkwood
14. Involving older people in research: empowering engagement?
      Lizzie Ward and Beatrice Gahagan
15. ‘Still out there?’ Is the service user voice becoming lost as user involvement moves into the mental health research mainstream?
      Kati Turner and Steve Gillard
16. Service user-led research in the NHS: wasting our time?
      Patsy Staddon
17. Should we? Could we? Measuring involvement
      Rachel Purtell, Wendy Rickard and Katrina Wyatt
18. Evaluating the impact of public involvement on research
      Rosemary Barber, Jonathan Boote, Glenys Parry, Cindy Cooper and Philippa Yeeles
Part Three: Questions for reflection

Conclusion: Critical and different perspectives on user involvement
      Marian Barnes and Phil Cotterell
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